Family health‐enhancing lifestyle or behavioural outcomes Timing: the longest time point available for each study Direction of effect: higher beneficial · Indigenous children aged < 5 years
1 finding from 1 review
Intervention not reported
Patient and family knowledge of danger signs and appropriate care‐seeking behaviours (1a) Acute Coronary Syndrome Response Index with 3 scales to measure knowledge (21 items), attitudes (5 items) and beliefs (7 items) (Buckley 2007; Dracup 2009). ... · Adults (and/or family members) with potential for acute life‐threatening illness
The intervention showed no clear difference in patient and family knowledge of danger signs and appropriate… (low certainty).
1 finding from 1 review
Intervention not reported
Patient and family self‐efficacy (1e) · Adults (and/or family members) with potential for acute life‐threatening illness
1 finding from 1 review
Intervention not reported
Patient and family perceptions of involvement in escalation of care (4b) · Adults (and/or family members) with potential for acute life‐threatening illness
The review found no eligible studies for this question.
1 finding from 1 review
no estimate extracted
Studies not reported
No studies found
Intervention not reported
Patient and family satisfaction with care received (4e) · Adults (and/or family members) with potential for acute life‐threatening illness
The review found no eligible studies for this question.
1 finding from 1 review
no estimate extracted
Studies not reported
No studies found
Intervention not reported
Patient harms associated with patient and family involvement in escalation of care (5a) Multiple Affect Adjective Checklist total score for state anxiety (range 0‐21). Higher scores signify higher anxiety; a score of ≥ 11 indicates clinically sign... · Adults (and/or family members) with potential for acute life‐threatening illness
1 finding from 1 review
Participants' health status and well‐being · Indigenous children aged < 5 years
1 finding from 1 review
Psychological health and emotional behaviour of children Timing: the longest time point available for each study Direction of effect: higher beneficial · Indigenous children aged < 5 years
1 finding from 1 review
Physical health and developmental health outcomes of children Timing: the longest time point available for each study Direction of effect: higher beneficial · Indigenous children aged < 5 years
1 finding from 1 review
Psychological health of parent/carer Timing: the longest time point available for each study Direction of effect: higher beneficial · Indigenous children aged < 5 years
1 finding from 1 review
Harms · Indigenous children aged < 5 years
1 finding from 1 review
Intervention not reported
Discussions of EoL/EoL care: discussion timing and length EMR review post‐death Timing: at time of family conference (intervention) in ICU; post‐death  · people approaching the end of life (within 12 months), their family members and/or carers
1 finding from 1 review
Family functioning · parents and carers of children with complex needs
1 finding from 1 review
no estimate extracted
81 participants
GRADE not reported
Quality of life Measures: ‐ Pediatric Asthma Caregiver's Quality of Life Questionnaire (PACQLQ) ‐ Beach Centre Family Quality of Life Scale (higher scores = better quality of life) Timing of · parents and carers of children with complex needs
1 finding from 1 review
Family functioning · parents and carers of children with complex needs
1 finding from 1 review
Confidence and skill at navigating medical services · parents and carers of children with complex needs
1 finding from 1 review
Intervention not reported
Time from start of symptoms to delivery of professional treatment (2a) Mean, median prehospital delay time from symptom onset of arrival at hospital/ED, proportion of participants presenting to the emergency department (ED) within 2, 3, and 4.5 hours · Adults (and/or family members) with potential for acute life‐threatening illness
1 finding from 1 review
Intervention not reported
Mortality measured by mortality rates including failure‐to‐rescuerates (3a) Stillbirth · Adults (and/or family members) with potential for acute life‐threatening illness
The intervention probably leads to lower mortality measured by mortality rates including… (moderate certainty).
1 finding from 1 review
Intervention not reported
Knowledge and understanding Variable scales: information (amount and type) needs/preferences; discordance between patient and physician survival and curability estimates Timing: immediately to 1 month post‐consultation · people approaching the end of life (within 12 months), their family members and/or carers
1 finding from 1 review
Intervention not reported
Evaluation of the communication: different constructs (perceptions of communication quality; patient‐centredness of communication; involvement preferences; doctor‐patient relationship measures) Timing: immediately post‐consultation to 18 weeks pos... · people approaching the end of life (within 12 months), their family members and/or carers
1 finding from 1 review