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What do systematic reviews say?

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Evidence found and GRADE certainty

8 questions · 8 findings · 2 reviews · Effective Practice and Organisation of Care · Headline outcomes only

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No studies found 1 · 12.5%GRADE not reported 0 · 0%Very low 0 · 0%Low 3 · 37.5%Moderate 4 · 50%High 0 · 0%

Summary of findings for the main comparison: comprehensive care programmes vs usual care

Parent health, functioning, and quality of life Patient‐Reported Outcomes Measurement Information System (PROMIS) (higher scores = more of the outcome of interest, which can mean improvement or deterioration depending on the outcome) · children with medical complexity
1 finding from 1 review

Summary of findings for the main comparison: comprehensive care programmes vs usual care

Child and family satisfaction with, and perceptions of, care and service delivery Family Experiences With Coordination of Care (FECC) survey (higher scores = better) Consumer Assessment of Healthcare Providers and Systems (CAHPS) (higher scores = ... · children with medical complexity
1 finding from 1 review