Search review questions

Adverse effects: Decision Regret Scale (Brehaut 2003) (Brown 2019; McBride 2016) Other DecisionRegret (Clark 1997), (Mishel 2009). Measured at up to 3 months post‐intervention

State and Trait Anxiety Inventory (Spielberger 1983) (Davison 1997; Kennedy 2002; Van Peperstraten 2010). Measured post‐intervention (Van Peperstraten 2010), 6 weeks post‐consultation (Davison 1997), and 12 months post‐consultation (Kennedy 2002)....

Preparation for decision‐making

Decision self‐confidence

Feeling uninformed subscale of Decisional Conflict Scale (O'Connor 1995b) standardised scored 0 to 100 (lower score indicate feeling more informed) change in score from baseline measured 2 weeks post‐consultation (Col 2007)

Unclear values subscale of Decisional Conflict Scale (O'Connor 1995b) standardised scored 0 to 100 (lower scores indicate feeling more clear values) change in score from baseline measured post 2 weeks post‐consultation (Col 2007)

Feeling unsupported subscale of Decisional Conflict Scale (O'Connor 1995b) standardised scored 0 to 100 (lower score indicates feeling more supported) change in score from baseline measured 2 weeks post‐consultation (Col 2007)

Knowledge tests: Standardised on score from 0 to 100 (none to perfect knowledge)

Feeling uniformed

Adverse effects: State and Trait Anxiety Inventory (Spielberger 1983): (Kennedy 2002). Hospital Anxiety and Depression Scale (Zigmond 1983) (Rahn 2018). Measured 2 weeks post‐intervention to 12 months post‐consultation

Unclear values

Feeling unsupported

Knowledge tests: Standardised on score from 0 (no knowledge) to 100 (perfect knowledge) Measured using different knowledge tests: post‐intervention (Green 2001) or one month (Matloff 2006) post‐intervention (Analysis 1.2)

Adverse effects: Decision Regret Scale (Brehaut 2003): Standardised on score from 0 to 100 (none to worst regret) measured 3 (Shepherd 2019) and 6 months (Hacking 2013) post‐consultationÂ

Hospital Anxiety and Depression (HAD) Scale (Zigmond 1983) Measured 3 months post‐consultation (Shepherd 2019) and 6 months (Hacking 2013) post‐intervention. Matloff 2006 measured worry about cancer 6 months post‐intervention (Diefenbach 1999) and...

Preparation for decision‐making

Medication‐taking ability · older patients using at least 4 regular prescription medications (and/or their carers)

Health‐related quality of life · older patients using at least 4 regular prescription medications (and/or their carers)

ED/Hospital admissions · older patients using at least 4 regular prescription medications (and/or their carers)

Mortality · older patients using at least 4 regular prescription medications (and/or their carers)

Medication‐taking ability · older patients using at least 4 regular prescription medications (and/or their carers)

Medication adherence (dichotomous) · older patients using at least 4 regular prescription medications (and/or their carers)

Medication adherence (continuous) · older patients using at least 4 regular prescription medications (and/or their carers)

Health‐related quality of life · older patients using at least 4 regular prescription medications (and/or their carers)

ED/Hospital admissions · older patients using at least 4 regular prescription medications (and/or their carers)

Mortality · older patients using at least 4 regular prescription medications (and/or their carers)

Medication adherence (dichotomous) · older patients using at least 4 regular prescription medications (and/or their carers)

Medication adherence (continuous) · older patients using at least 4 regular prescription medications (and/or their carers)

Health‐related quality of life · older patients using at least 4 regular prescription medications (and/or their carers)

Emergency department (ED)/Hospital admissions · older patients using at least 4 regular prescription medications (and/or their carers)

Mortality · older patients using at least 4 regular prescription medications (and/or their carers)

Medication‐taking ability · older patients using at least 4 regular prescription medications (and/or their carers)

Medication adherence (dichotomous) · older patients using at least 4 regular prescription medications (and/or their carers)

Medication adherence (continuous) · older patients using at least 4 regular prescription medications (and/or their carers)

Patient and family knowledge of danger signs and appropriate care‐seeking behaviours (1a) Acute Coronary Syndrome Response Index with 3 scales to measure knowledge (21 items), attitudes (5 items) and beliefs (7 items) (Buckley 2007; Dracup 2009). ... · Adults (and/or family members) with potential for acute life‐threatening illness

Patient and family self‐efficacy (1e) · Adults (and/or family members) with potential for acute life‐threatening illness

Time from start of symptoms to delivery of professional treatment (2a) Mean, median prehospital delay time from symptom onset of arrival at hospital/ED, proportion of participants presenting to the emergency department (ED) within 2, 3, and 4.5 hours · Adults (and/or family members) with potential for acute life‐threatening illness

Mortality measured by mortality rates including failure‐to‐rescuerates (3a) Stillbirth · Adults (and/or family members) with potential for acute life‐threatening illness

Patient and family perceptions of involvement in escalation of care (4b) · Adults (and/or family members) with potential for acute life‐threatening illness

Patient and family satisfaction with care received (4e) · Adults (and/or family members) with potential for acute life‐threatening illness

Patient harms associated with patient and family involvement in escalation of care (5a) Multiple Affect Adjective Checklist total score for state anxiety (range 0‐21). Higher scores signify higher anxiety; a score of ≥ 11 indicates clinically sign... · Adults (and/or family members) with potential for acute life‐threatening illness

Health status and well‐being – maternal mortality and morbidity · pregnant and postpartum women

Service utilisation – attendance antenatal care appointments · pregnant and postpartum women

Service utilisation: intrapartum care – skilled attendant at birth · pregnant and postpartum women

Unintended consequences · pregnant and postpartum women

Health status and well‐being – maternal mortality and morbidity · pregnant and postpartum women

Health status and well‐being – neonatal mortality and morbidity · pregnant and postpartum women

Health behaviour change: breastfeeding · pregnant and postpartum women

Service utilisation – attendance antenatal care appointments (attendance for antenatal influenza vaccination) · pregnant and postpartum women

Service utilisation: intrapartum care – skilled attendant at birth · pregnant and postpartum women