Findings

What do systematic reviews say?

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Evidence found and GRADE certainty

346 questions · 375 findings · 54 reviews · Effective Practice and Organisation of Care

No studies found 84 · 22.4%GRADE not reported 18 · 4.8%Very low 93 · 24.8%Low 103 · 27.5%Moderate 62 · 16.5%High 15 · 4%

Summary of findings for the main comparison: comprehensive care programmes vs usual care

Parent health, functioning, and quality of life Patient‐Reported Outcomes Measurement Information System (PROMIS) (higher scores = more of the outcome of interest, which can mean improvement or deterioration depending on the outcome) · children with medical complexity
1 finding from 1 review

Summary of findings for the main comparison: comprehensive care programmes vs usual care

Child and family satisfaction with, and perceptions of, care and service delivery Family Experiences With Coordination of Care (FECC) survey (higher scores = better) Consumer Assessment of Healthcare Providers and Systems (CAHPS) (higher scores = ... · children with medical complexity
1 finding from 1 review