Search review questions

Knowledge Diabetes Knowledge Test (14 items; range of scores not reported)

Empowerment Diabetes Empowerment Scale (range 0 to 5) Kansas City Cardiomyopathy Questionnaire KCCQ (range 0 to 100) Patient Empowerment Scale PES (range not reported) Patient Activation Measure PAM (range not reported)

Adherence to preventive services/monitoring 6 to 16 months'

Adherence to medications 12 months'

Patient satisfaction Art of Medicine Questionnaire AMQ (range 0 to 5) Diabetes Treatment Satisfaction Questionnaire DTSQ (range not reported) Patient Assessment of Chronic Illness Care questionnaire (PACIC) Consumer Assessment of Healthcare Provid...

Adverse events 12 months'

Health service alterations (changes to services resulting from decisions) · consumer and provider partnership participants or trial participants

Health service user (trial participant) health service performance ratings (local accountability) · consumer and provider partnership participants or trial participants

Health service user (trial participant) health service utilisation patterns · consumer and provider partnership participants or trial participants

Resources associated with decision‐making process · consumer and provider partnership participants or trial participants

Resources associated with implementing decisions (e.g. changed services) · consumer and provider partnership participants or trial participants

Adverse events · consumer and provider partnership participants or trial participants

Degree to which health service alterations reflect health service user (trial participant) priorities (demand responsiveness) · consumer and provider partnership participants or trial participants

Health service user (trial participant) health service performance ratings (local accountability) · consumer and provider partnership participants or trial participants

Health service user (trial participant) health service utilisation patterns · consumer and provider partnership participants or trial participants

Resources associated with decision‐making process · consumer and provider partnership participants or trial participants

Resources associated with implementing decisions (e.g. changed services) · consumer and provider partnership participants or trial participants

Adverse events · consumer and provider partnership participants or trial participants

Health service alterations (changes to services resulting from decisions) · consumer and provider partnership participants or trial participants

Degree to which health service alterations reflect health service user (trial participant) priorities (demand responsiveness) · consumer and provider partnership participants or trial participants

Proportion able to communicate or phonate · adults requiring an artificial airway with or without mechanical ventilator support

ICU length of stay and healthcare costs · adults requiring an artificial airway with or without mechanical ventilator support

Adverse events · adults requiring an artificial airway with or without mechanical ventilator support

Proportion able to communicate · adults requiring an artificial airway with or without mechanical ventilator support

Health‐related quality of life · adults requiring an artificial airway with or without mechanical ventilator support

Emotional and psychological distress · adults requiring an artificial airway with or without mechanical ventilator support

ICU length of stay (days) and healthcare costs · adults requiring an artificial airway with or without mechanical ventilator support

Adverse events · adults requiring an artificial airway with or without mechanical ventilator support

Health‐related quality of life · adults requiring an artificial airway with or without mechanical ventilator support

Emotional and psychological distress · adults requiring an artificial airway with or without mechanical ventilator support

ICU length of stay (days) · adults requiring an artificial airway with or without mechanical ventilator support

Costs · adults requiring an artificial airway with or without mechanical ventilator support

Adverse events · adults requiring an artificial airway with or without mechanical ventilator support

Proportion able to communicate or phonate · adults requiring an artificial airway with or without mechanical ventilator support

Health‐related quality of life · adults requiring an artificial airway with or without mechanical ventilator support

Emotional and psychological distress · adults requiring an artificial airway with or without mechanical ventilator support

Preparation for decision‐making scale (Bennett 2010) (higher scores = feeling more prepared). Measured: Post‐consultation (Shepherd 2019)

Decision self‐confidence: Empowerment scale (McAllister 2011): Standardised on score from 0 to 100 (none to highest efficacy) measured 1 week post‐intervention (Adam 2019)

Feeling uninformed subscale of Decisional conflict Scale (O'Connor 1995b) measured post‐consultation (Deschamps 2004)

Unclear values

Feeling unsupported

Knowledge tests: Standardised on score from 0 to 100 (none to perfect) knowledge

Adverse effects: State and Trait Anxiety Inventory (Spielberger 1983): Standardised score from 0 to 100 (none to worst anxiety) measured post‐ intervention (Hunter 2005)

Preparation for decision‐making scale (Bennett 2010): standardised scored from 0 to 100 (none to highest prepared) measured one month post‐intervention (Brown 2019)

Decision self‐confidence: Decision self‐efficacy scale (O'Connor 1995): range 0 to 100 (none to perfect self‐efficacy) measured 12 weeks post‐intervention (McBride 2016)

Feeling uninformed subscale of Decisional Conflict Scale (O'Connor 1995b): standardised scored 0‐100 (lower score indicates feeling more informed) measured post‐intervention and post‐consultation (Analysis 3.1). A fourth study (Col 2007) measured ...

Unclear values subscale of Decisional Conflict Scale (O'Connor 1995b): standardised scored 0‐100 (lower scores indicate feeling clearer values) measured post‐intervention or post‐consultation (Analysis 3.2). A fourth study (Col 2007) measured chan...

Decision self‐confidence: Decision self‐efficacy scale (O'Connor 1995): range 0 (no self‐efficacy) to 100 (perfect self‐efficacy). Measured: Post‐consultation (Hacking 2013; Shepherd 2019) (Analysis 1.1)

Feeling unsupported subscale of Decisional Conflict Scale (O'Connor 1995b) standardised scored 0‐100 (lower score indicates feeling more supported) measured post‐intervention or post‐consultation (Analysis 3.3). A fourth study (Col 2007) measured ...

Knowledge tests: Standardised on score from 0 to 100 (none to perfect knowledge), using various knowledge tests.