Cochrane · systematic review · CD004563

Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material

Nilsen, ES, Myrhaug, HT, Johansen, M, et al. · Cochrane Database of Systematic Reviews · 2006 · Cochrane Library

Consumers and CommunicationAMSTAR 2: not assessed
SoF tableOnly the outcomes this review put in its Summary of Findings table are listed (the Cochrane Handbook caps them at about seven per comparison). Its other analyses are not shown here.
Questions
10
current version
GRADE rated
9
No studies
1
Included studies
NR
No studies 1 · 10%Ungraded 0 · 0%Very low 1 · 10%Low 5 · 50%Moderate 3 · 30%High 0 · 0%

Ungraded means an effect was reported without a GRADE rating; it is not a gap. No studies means the review found nothing to answer the question. The six categories are a display order, not a score.

Questions and results

Comparison

Population: Mental health patients
2 questions
OutcomeEffectEvidenceStatus / GRADE
Satisfaction with mental health services (consumer influence on resource utilisation)
no estimate extracted2 studies · 650 participantsLow
Downgraded: risk of bias
MD: Mean difference
no estimate extractedNRNo studies

Comparison

Population: Consumers of a community organization
1 question
OutcomeEffectEvidenceStatus / GRADE
Healthcare priorities (consumer influence on decisions)
no estimate extracted1 study · 29 participantsVery low
Downgraded: risk of bias, imprecision

Comparison

Population: patients undergoing endoscopy or patients who receive PCA
3 questions
OutcomeEffectEvidenceStatus / GRADE
Anxiety (consumer influence on healthcare outcomes)
no estimate extracted2 studies · 335 participantsModerate
Downgraded: risk of bias
Satisfaction with information material (consumers' satisfaction with products resulting from consumer involvement)
no estimate extracted2 studies · 335 participantsModerate
Downgraded: risk of bias
Knowledge of patient‐controlled analgesia (consumer influence on healthcare outcomes)
no estimate extracted1 study · 100 participantsModerate
Downgraded: risk of bias

Comparison

Population: Patients with Gulf War veterans' illness
4 questions
OutcomeEffectEvidenceStatus / GRADE
Understanding (consumer influence on healthcare outcomes) Informed Consent Questionnaire‐4. Scale from: 0 to 1. (
no estimate extracted1 study · 1092 participantsLow
Downgraded: risk of bias
Satisfaction (consumer satisfaction resulting from consumer involvement)
no estimate extracted1 study · 1092 participantsLow
Downgraded: risk of bias
Adherence (participation rates of consumers)
no estimate extracted1 study · 1092 participantsLow
Downgraded: risk of bias
Refusal to participate (participation rates of consumers)
no estimate extracted1 study · 1092 participantsLow
Downgraded: risk of bias