Psychological distress Measures: ‐ Parenting Stress Index (PSI‐SF) ‐ Psychiatric Symptom Index (PSI) ‐ PSI anxiety sub‐scale ‐ State anxiety inventory ‐ Center for Epidemological Studies Depression Scale (CES‐D) ‐ Profile of Mood State Inventory (... · parents and carers of children with complex needs
1 finding from 1 review
Confidence and self‐efficacy · parents and carers of children with complex needs
1 finding from 1 review
Perception of coping · parents and carers of children with complex needs
1 finding from 1 review
Quality of life Measures: ‐ Pediatric Asthma Caregiver's Quality of Life Questionnaire (PACQLQ) ‐ Beach Centre Family Quality of Life Scale (higher scores = better quality of life) Timing of · parents and carers of children with complex needs
1 finding from 1 review
Family functioning · parents and carers of children with complex needs
1 finding from 1 review
Perceived social support · parents and carers of children with complex needs
1 finding from 1 review
Confidence and skill at navigating medical services · parents and carers of children with complex needs
1 finding from 1 review
Adverse events · parents and carers of children with complex needs
The review found no eligible studies for this question.
1 finding from 1 review
no estimate extracted
Studies not reported
No studies found
Intervention not reported
Registration behaviour: ICC adjusted (dichotomous) · increasing solid organ donation registration
The intervention may leads to higher registration behaviour: ICC adjusted (dichotomous) (low certainty).
1 finding from 1 review
Intervention not reported
Registration intention (dichotomous) · increasing solid organ donation registration intention
The intervention may leads to higher registration intention (dichotomous) (low certainty).
1 finding from 1 review
Intervention not reported
Registration intention: ICC adjusted (continuous) · increasing solid organ donor registration
1 finding from 1 review
Comfort in dying · advanced dementia
1 finding from 1 review
Pain ‐ not measured · advanced dementia
The review found no eligible studies for this question.
1 finding from 1 review
no estimate extracted
Studies not reported
No studies found
Palliative care plan in place ‐ not measured · advanced dementia
The review found no eligible studies for this question.
1 finding from 1 review
no estimate extracted
Studies not reported
No studies found
Quality of life ‐ not measured · advanced dementia
The review found no eligible studies for this question.
1 finding from 1 review
no estimate extracted
Studies not reported
No studies found
Advance care planning discussion occurred · advanced dementia
Advance care planning showed no clear difference in advance care planning discussion occurred compared with usual care (low certainty).
1 finding from 1 review
Concordance with goals of care · advanced dementia
Advance care planning may leads to higher concordance with goals of care compared with usual care (low certainty).
1 finding from 1 review
Symptom management · advanced dementia
1 finding from 1 review
Pain ‐ not measured · advanced dementia
The review found no eligible studies for this question.
1 finding from 1 review
no estimate extracted
Studies not reported
No studies found
Palliative care plan in place · advanced dementia
It is very uncertain whether organisation and delivery changes palliative care plan in place compared with usual care (very low certainty).
1 finding from 1 review